I have been away from the blog for almost a week. My aunt Marilee passed away on Tuesday. I drove to Marquette, KS on Wednesday for her funeral where I delivered a eulogy. I have eulogized before, but that was the toughest one. She was like a mother and a sister to me. She had Down Syndrome. Marilee was 72 years old. I hope that we can bring some of her loving spirit to Anders.
Anders now weighs 4lbs 15oz. We bathed him today for the first time. He handled the bath well. He cried at first, but seemed to enjoy it later.
Anders has a below average hemoglobin number. They are not yet considering a transfusion, but he needs to make some improvement.
The medical team dropped his oxygen amount dramatically yet again yesterday. You can imagine what happened. As Anna said on caringbridge.com, they are focusing on keeping him at room air while keeping his flow a bit higher. Yesterday, I received a call from his doctor saying that he would be dropped from one liter to .75 liters of O2. Yet, when we came back in the late afternoon, our nurse told us that the nurse practitioner had provisionally decided to drop him to .25 liters of oxygen. Anders did not respond well. When we arrived today he was back up to 1 liter and about 22.6% oxygen, 1 percent above room air. One step forward, two steps back. He CANNOT be pushed. I made our concerns known and this evening there is a note on his oxygen saying not to drop it without consulting his chart. They have now done the drastic drop twice in two weeks. I feel that I thoroughly conveyed my point. I do not expect it to happen again.
On the positive side, we hear a lot about the cuteness of Anders, more than just being polite, all the comments make us think he is objectively cute.
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