Friday, March 21, 2014

Update

It's been a big couple of days for doctors appointment for Henrik.  Yesterday he visited the cardiologist and today he went to his special preemie doctor in the Texas Medical Center.
Last week he went to the pulminologist who said Henrik will remain on oxygen until his sleep study on April 18.  Henrik must spend the entire night at the doctor's office.  Thus, Anna will do so as well.
The cardiologist appointment took a long time.  It was in Sugar Land, which is a satellite location for the main clinic.  This satellite location was  in a massage therapy and plastic surgery office.  It was an interesting spot to take your baby.  That appointment turned out well, but Dr. Burkholder said that because of a quirk of how his heart was made, Henrik cannot scuba dive.  Then, tonight I was out for a walk and for the first time ever, I saw through an open storefront door a bunch of guys in scuba gear in a shallow pool.  What were the chances!  I suspect that Anders will look at the actuarial tables and determine that neither he nor Henrik should ever scuba dive.  We will have to remind Henrik not to scuba dive when he gets older.  I think it's because of a valve that doesn't completely close, but Anna, me, and I think Anders have the same thing.
Henrik weighed 10 lbs 5 oz yesterday in clothes and with a full diaper, while today he weighed 9 lbs 13 oz.  He is 22 1/2 inches long.
Today at the doctor, Henrik had four shots and had blood drawn.  He was pretty spent after that and has been sleeping most of the day.
I feel at this point like I've just been going to doctor appointments for spring break!
Fortunately, Henrik is done with doctor appointments until the sleep study next month.  Then he will have a six month checkup on May 23.  6
Henrik got out of the hospital on February 22.  Anders and Henrik both spent 96 days in the hospital, but Anders had a random night in the hospital due to high fever when we lived in Ohio, so Anders is up 97 to 96, a distinction no one wants!
We continue to live with O2 in the house and an apnea monitor at night.  The apnea monitor is so loud that it is slowly destroying what is left of my hearing.  Henrik's special preemie doctor and his cardiologist don't really think Henrik continues to need O2, but only the pulminologist matters at this point.
One last thing, there was a funny sibling moment last week.  One of the boys' first true sibling moments as Anders was climbing naked on the couch, then he slipped and bumped Henrik on the head with his naked butt.  Henrik was initially shocked, but that shock quickly turned to tears.  Anna immediately thought that Henrik's head had been dented.  It was two minutes of utter pandemonium.  I guess that's life with kids rather than kid.
I'll probably be back writing in another two months.

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